John Lilea of This Ain't Hell But You Can See It From Here has been diagnosed with Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig's Disease.
I have amyotrophic lateral sclerosis (ALS) more commonly known as Lou Gehrig’s Disease. It is a neurodegenerative disease of unknown cause that breaks down tissues in the nervous system and affects the nerves responsible for movement. Well, I say I “have” the disease, but there’s no real test to prove that’s what it is – the doctors have to eliminate everything else in order to arrive at that diagnosis.
The good news is that I’m still around – many people die from it in less than two years after the symptoms start appearing. So far, it’s only affected my feet and lower legs. Today, the doctors at the West Virginia ALS clinic tested my ability to breath (how most people die when the respiratory system doesn’t talk to the brain) is higher than they expected. The doctor said she’s going to put the test results on her fridge.
Luckily, my real job doesn’t require more than sitting at a computer, like this one, so as long as my hands work, I’m good. My hands show no signs of not working. I do have a problem doing math in my head and my vocabulary is slowly contracting, but there are computers for that I hear.
Hope you'll send prayers out to John.
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